Voluntary organisations: Use our directory to find long term health condition support groups on the Isle of Wight


General Support

John Cheverton Information and Support Centre, Earl Mountbatten Hospice

Health conditions covered – all life limiting conditions

The centre is open to anyone and everyone affected in anyway by any potentially life limiting illness (this includes relatives, friends, carers and health care professionals). It is open Monday – Friday 10am-4pm on a drop in basis and has been designed to offer contact, support, information, direction and help. Someone will always be available to listen to you and discuss your needs. We warmly welcome everyone to the centre or alternatively please telephone.

Phone: 01983 535319
Email: infosupport@iwhospice.org


Carers Isle of Wight and Quay Carers

Health conditions covered – Unpaid Adult Carers of Adults

Contact: Elizabeth Martin/Soo Scott
Phone: 01983 533173
Email: carersiw@btconnect.com
Website: http://carersukiwbranch.wordpress.com


Alcohol Support

Al Anon, Isle of Wight Family Groups

Health conditions covered – Al Anon provide support to families surviving alcoholism.

Weekly Al Anon family meetings take place at IDAS, 102 Carisbrooke Road, Newport PO30 1DB at 7.30 pm on Mondays and 7.45 pm on Wednesdays at Arthur Webster Clinic, Landguard Manor Road, Shanklin PO37 7HZ. These meetings are drop in sessions and you can just turn up.

Contact through the central office on: 020 7403 0888
Email: enquiries@al-anonuk.org.uk
Website: http://al-anonuk.org.uk
 


Arthritis

Isle of Wight Rheumatoid and Inflammatory Arthritis (NRAS) Group

Health conditions covered – Inflammatory Arthritis: Rheumatoid Arthritis, Psoriatic Arthritis, Ankylosing Spondylitis

Contact: Hayley Bartlett 07708469764
Email: hayley@iwrias.org.uk
Website: http://www.iwrias.org.uk/
Facebook: Isle of Wight Rheumatoid and Inflammatory Arthritis (NRAS) Group have a page and group set up on Facebook.


Autism

Health conditions covered – AIM is a group on the Isle of Wight for adults (over 18) who have Autism or Asperger’s, also known as an Autistic Spectrum Disorder (ASD) or Autistic Spectrum Condition (ASC). It is not a group for parents or carers, or professionals. AIM is a user lead group. This means that with support, people who have ASD will decide what happens in the group and help to run the group.

This social group is aimed at helping people who have ASD who may feel lonely, or find it difficult to meet people and make friends. The group will choose where to meet together and what activities to do. We will support members to find people who have shared interests, and build friendships. We hope to have a range of activities that are chosen by members.

We also have an advocacy group, to listen to what adults with ASD have to say about life on the Isle of Wight, and to make changes.

Contact: 01983 523000 and ask to speak to the AIM coordinator.
Email: aimisleofwight@gmail.com


Asthma

Isle of Wight Asthma Swim Group

Health conditions covered – asthma

The Isle of Wight Asthma Swim group was formed in 1984 by the Isle of Wight Branch of what is now Asthma UK to encourage people with asthma to enjoy exercise. Swimming is known to be the least provocative exercise for asthmatics.

Contact: Liz Bell 01983 564356


Cancer

John Cheverton Information and Support Centre, Earl Mount Batten

Health conditions covered – Cancers and other life limiting conditions

The centre is open to anyone and everyone affected in anyway by any potentially life limiting illness (this includes relatives, friends, carers and health care professionals). It is open Monday – Friday 10am-4pm on a drop in basis and has been designed to offer contact, support, information, direction and help. Someone will always be available to listen to you and discuss your needs. We warmly welcome everyone to the centre or alternatively please telephone.

Phone: 01983 535319
Email: infosupport@iwhospice.org


Carers

Carers IW

Health conditions covered – Unpaid Adult Carers of Adults
Contact: Elizabeth Martin/Soo Scott
Phone: 01983 533173
Email: info@carersiw.org.uk
Website: http://carersiw.org.uk


Dementia

Alzheimer Cafe Isle of Wight

Health conditions covered – Dementia – all types

An Alzheimer Café is a form of group support for people with Dementia, their families and friends.

Its purpose is to provide psychological education about Dementia in a café style setting and create opportunities for people to ‘stay connected’ with each other.

Contact: Katy Peplow
Phone: 01983 220200
Email: Alzheimercafe.iow@btconnect.com
Website: http://alzheimercafeiow.org.uk
Facebook – AlzheimerCafeIOW
Twitter – @AzCafeIOW

There are six Cafes Island wide with a 7th due to open September 2015:

COWES- 2nd Wednesday monthly 2- 4.30pm The Masonic Centre, Castle Road, Cowes. PO31 7QY
NEWPORT- Last Thursday monthly 6pm-830pm St John’s Church Hall Nodehill Newport PO30 1EQ
RYDE- 1st Friday monthly 1130am-2pm All Saints Church, Queens Road, Ryde PO33 3BG
TOTLAND- 3rd Wednesday monthly 2-4.30pm St Saviour’s Holy Family Centre, Weston Lane PO39 0HE
SANDOWN- 2nd Tuesday monthly 6pm-8.30pm The Methodist Church York Road Sandown Po36 8ET
VENTNOR- 1st Wednesday monthly 2-4.30pm Baptist Church, Pier Street, Ventnor PO38 1SX


Diabetes

Diabetes UK Isle of Wight Voluntary Group

Health conditions covered – Diabetes
Local branch of Diabetes UK. The group meet on a monthly basis with informative lectures and to enable people to meet each other.
Contact: Richard Newnham
Phone: 01983280870
Email: ricnewnham@onwight.net
Website: http://isle-of-wight.diabetesukgroup.org/home/iow—home.asp


Fibromyalgia

Isle of Wight Fibromyalgia Support Group

Health conditions covered – Fibromyalgia, Chronic Fatigue Syndrome, ME

The group meets on the 2nd Tuesday on the month (except August and December) at 1.30 until 4pm All Saints Church, Ryde. Cost is £3 per meeting which includes refreshments. Carers go free to first meeting, discounts apply for subsequent meetings. Lending library and Monthly newsletter available.

Contact: Karen Smith
Phone: 0844 887 2346
Email: iwfmsg.fibromates@gmail.com
Website: http://isleofwightfibromyalgia.webs.com
Facebook: Fibromates-Isle of Wight Fibromyalgia Support Group
Facebook: Friends of Fibromates IW for friends, or family of sufferers & non-members with FM, CFS and ME


Hearing Impairment

Action on Hearing Loss Sensory Service Isle of Wight

Health conditions covered – Diagnosed hearing loss (either privately or through the NHS), dual sensory loss (deafblind). Support services to adults living with hearing loss or dual hearing and sight loss on the Isle of Wight on behalf of the Isle of Wight Council.

Services include free home assessment and free equipment loan service based on the assessment of needs, mobility training, access to specialist advice and support for anyone with a sensory loss, befriending and coffee mornings and monthly drop in clinics across the Island for maintenance of NHS hearing aids.

Contact: Ann Emery, Service Manager
Phone: 01983 529533, Textphone: 01983 529998
Email: IOW@hearingloss.org.uk
Website: http://actiononhearingloss.org.uk


Heart Diesease

Isle of Wight Heart Care Club

Health conditions covered – All heart conditions
Contact: Mrs Lyn Smith
Phone: 01983 296091
Email: lynsmith250@hotmail.co.uk
Website: http://islandheartcareclub.org.uk


M.E. - Myalgic Encephalopathy/Chronic Fatigue Syndrome

Hampshire Friends with M.E.

Contact: Vicky Mould 08458340325


Neurological Conditions

Epilepsy Society (Isle of Wight)

Health conditions covered – Epilepsy
Contact: Dave Piggott
Phone: 01983405825
Email: davidpiggott@yahoo.co.uk


Obsessive Compulsive Disorder (OCD)

Obsessive Compulsive Disorder (OCD) Support Group

This group has been running for about two years and provides a free, confidential, safe environment for people with OCD to discuss problems, worries, concerns and meet other people with the condition. The group is open to anyone aged 14+ (those under 18 need to attend with a parent/carer) and meets on the 2nd Tuesday of each month between 6.30 and 8.30 at the Age UK Offices in Newport.

Contact: Brian Taylor
Phone: 07870 171990
Email: briantaylor1938@talktalk.net


Pituitary Support

Solent Pituitary Support Group

Meets once a year on the Isle of Wight but regularly in Portsmouth
Contact: Melissa Reeds
Email: melissa.reeds@glanvilles.co.uk


Respiratory Disease

Breathe Easy Isle of Wight/BLF Active Isle of Wight

Health conditions covered - Chronic Lung Conditions

We are a support group for anyone living and managing a Chronic Lung Condition and we meet every 2nd Friday of the month from 2pm – 4pm in the Respiratory Department, St Mary’s Hospital. (January, June and Sept Meetings are normally outings or meals held at other locations).

We are linked to the British Lung Foundation and are supported by the Respiratory Team. We have a BLF Active Network of weekly exercise classes that are held in the Respiratory Gym and various community centres and church halls across the Island. This is partly funded through the CCG, Community Action IW and the My Life a Full Life Program. Classes are led by a qualified Level 4 Chronic Respiratory and GP Referral Exercise specialist.

Contact: Andy Savage
Phone: Andy Savage 01983 810932 or Respiratory Department 01983 552190
Email: ajsavage67@yahoo.co.uk
Website: British Lung Foundation http://lunguk.org
Facebook: Breathe Easy IOW


Sleep Disorders

Sleepwell

Health conditions covered – sleep disorders and CPAP treatment
Contact: Tracy Jones, Lead Physiologist or Mike Douse – Chairman
Phone: 01983 552114
Email: isleofwightsleepwell@hotmail.co.uk
Website: http://sleepwell-iow.org
Facebook: a link to join the closed Facebook group is available via the website


Stroke

Isle of Wight Stroke Club

Health conditions covered – Stroke – CVA, TIA
Contact: Carole Greenham or Bob Stringer
Phone: 01983 869 100
Email: enquiries@wightfightingstroke.org
Website: http://wightfightingstroke.org
Facebook: https://www.facebook.com/home.php#!/groups/i.o.w.strokeclub/


Tinnitus

Tinnitus Support Group

The Tinnitus Support Group meets 4 times a year at Riverside, Quay Street, Newport.
They are a well-established group but are really very welcoming to new members.
Contact: Pete Coulson
Email: pete.coulson@talktalk.net


Tourettes

Isle of Wight Tourette's Group

On line support and group meetings available.
Contact: Jennifer Smallman
Email: Jennifersmallman@outlook.com
Facebook: IOW Tourette’s Support Group


Visual Impairment

Isle of Wight Society for the Blind

Health conditions covered – all aspects of Visual Impairment
Support to families and friends of people with a visual impairment
Contact: Estelle Thomas
Phone: 01983 522205
Email: enquiries@iwsb.org.uk
Website: www.iwsb.org.uk


Work opportunities

The Shaw Trust

Work and Choice Programme. Specialist Support for people with disabilities to find and stay in work.
Contact: Lynette David
Phone: 03002 472360
Email: lynette.david@shaw-trust.org.uk